Message from Stuart Klein, Executive Director

StuartKlein.png

At this time of year, we set aside time to give thanks for the people who make a difference in our lives. It could be a family member, friend, loved one or someone in our community such as a military veteran, first responder or teacher. We are surrounded by people, seen and unseen, who impact our lives in a positive way every day.

This month we acknowledge our radiation therapists during National Radiologic Technology Week (November 8 - 14). This team of highly skilled professionals delivers exceptional care to patients every day. They expertly operate the proton therapy, IMRT, SBRT, MRI and CT equipment for safe and accurate patient treatment. Their commitment to excellence is recognized in the industry and serves as a model for other proton therapy centers. We are fortunate to have such an experienced team of people trained in proton therapy. For more than seven years, we have been able to treat the maximum number of patients possible because our radiation therapists alternate working two shifts. They're among the first to arrive at 6 a.m. and the last to leave at 11 p.m., or sometimes later. We thank our radiation therapists for their dedicated and compassionate care.

On behalf of everyone at UF Health Proton Therapy Institute, I wish you and your family a very Happy Thanksgiving.

Sincerely,

Stuart L. Klein

Survivor Spotlight: Joe Solsona

Patriotic.jpg

By Theresa Edwards Makrush

Helping military veterans and their spouses navigate the Veterans Affairs medical system is a service that Joe Solsona has developed into a nonprofit organization called National Association Veterans & Families - Veterans Support Center. It started in 2008 when his aunt needed homecare and was having difficulty applying for VA benefits. Through that experience, he discovered a tremendous need for help among veterans in similar situations.

"We didn't realize there was such a huge void," said Joe. "It has morphed into something that is much huger than I could have imagined." Since formalizing the nonprofit and becoming accredited with the VA to provide the service to veterans and spouses, the NAVF has handled 30,000 claims and has had only two claims denied. The organization regularly has referrals from the offices of local U.S. congressmen and attorneys to handle claims for Agent Orange, PTSD, homecare and assisted living.

When he was diagnosed with prostate cancer in 2014, Joe applied his health care system navigation skills to his own case. He talked to men who had been treated for prostate cancer, including two physicians he knew, who told him about having robotic surgery, brachytherapy, and radiation. He weighed the pros and cons of each treatment and chose proton therapy at UF Health Proton Therapy Institute because, he said, it had similar effectiveness in controlling the cancer but with fewer side effects.

Following hormone therapy, in February 2015 he started eight weeks - 39 treatments - of proton therapy. While on treatment Joe said he experienced fatigue and cut back on the number of hours he worked, going from 14 hours to about seven hours a day. He also noticed that he was more sensitive to the hot weather, but he was still able to compete in skeet, though for shorter periods than usual.

Joe, who turns 67 years old next month, had his six-month follow-up appointment the Wednesday before Halloween and is doing well, though is still recovering his energy level. Yet, he is not concerned for himself, but for others who are facing a cancer diagnosis and could benefit from proton therapy. Through his advocacy, a spouse of someone he knows is being treated with protons for breast cancer. "I feel it's very important for the public, veterans and spouses to be aware of what is available," he said.

November is national awareness month for lung cancer and pancreatic cancer

3.jpg

By Theresa Edwards Makrush

During November, advocacy groups turn our attention to two of the deadliest cancers in the U.S. - lung cancer and pancreatic cancer. Symptoms can be mistaken for other more benign illnesses before lung cancer is diagnosed at a more advanced stage. Pancreas cancer is even more challenging since symptoms typically do not occur until the cancer has spread to other organs.

Treatments are usually a combination of surgery, chemotherapy and radiation. Radiation is often used following surgery to destroy any remaining cancer cells. It is sometimes used before surgery to shrink the size of the tumor. For inoperable (unresectable) tumors, radiation is used with curative, or in some cases palliative, intent.

Facts and Stats
Lung cancer is the second most common cancer in American men and women, accounting for 13 percent of all new cancer diagnoses each year and is the leading cause of cancer death.1 Pancreatic cancer in comparison is less common, accounting for three percent of all new cancer diagnoses each year, yet it is the third most common cause of cancer death in the U.S.2

Early evidence for proton therapy in treating lung and pancreatic cancers suggests that patients can expect similar cure rates to conventional treatment methods, but will experience fewer treatment-related complications. Unlike X-rays, proton beams can be conformed to the size and shape of the treatment area to minimize or avoid damage to surrounding sensitive organs. For lung cancer patients this means a reduced risk of developing treatment-related pneumonia, pain with swallowing, and cardiac disease.3 For pancreatic cancer patients it means a reduced risk of developing treatment-related serious bowel or stomach issues.4

Lung cancer treated with protons     

Both small cell lung cancer and non-small cell lung cancer (NSCLC) are the subject of clinical research at UF Health Proton Therapy Institute. Recent published articles in the International Journal of Radiation Oncology Biology Physics, Clinical Lung Cancer and Acta Oncologica reported on early outcomes of patients following proton therapy for stage II & III NSCLC and limited-stage small cell lung cancer. The researchers concluded that the combination of proton therapy and chemotherapy can provide patients with an aggressive treatment that is less toxic than conventional X-ray radiation.5, 6, 7

Clinical trials open for enrollment to eligible lung cancer patients include one for a shorter treatment approach for stage II & III non-small cell lung cancer and another for a shorter treatment approach for stage I non-small cell lung cancer.

For more information about proton therapy and lung cancer, visit our cancers treated page.

Pancreatic cancer treated with protons

One of the important areas of treatment, clinical trials and study at UF Health Proton Therapy Institute is pancreatic cancer. The goal is to improve patient outcomes for a disease that is often challenging to treat successfully. An article published in the International Journal of Particle Therapy reported early outcomes following proton therapy for patients with pancreatic cancer who were not eligible for surgical removal of the disease due to the position of the tumor. 8

Patients were treated with both chemotherapy and proton therapy. Significantly, the study reports that patients were able to tolerate the treatment well with no severe gastrointestinal side effects during treatment and in the two years following. This suggests that there is an opportunity to safely intensify the treatment, which may lead to improved survival rates. Two clinical trials are currently open to enroll eligible pancreatic cancer patients: postoperative proton therapy in surgically removed (resected) pancreatic cancers; and preoperative proton therapy in pancreatic cancers that can be partially removed (borderline or marginally resectable).

For more information about proton therapy and pancreatic cancer, visit our cancers treated page.

References

1. Seer Stat Fact Sheets: Lung and Bronchus Cancer. http://seer.cancer.gov/statfacts/html/lungb.html. Retrieved Nov. 11, 2015.

2. Seer Stat Fact Sheets: Pancreas Cancer. http://seer.cancer.gov/statfacts/html/pancreas.html. Retrieved Nov. 11, 2015.

3. Image-Guided Proton Therapy for Lung Cancer and Thymoma. http://www.floridaproton.org/sites/default/files/docs/LungCancerFactSheet.pdf Retrieved Nov. 11, 2015.

4. Proton Therapy for Pancreatic Cancer. http://www.floridaproton.org/cancers-treated/pancreatic-cancer. Retrieved Nov. 11, 2015

5. Hoppe BS, Flampouri S, Henderson RH, Pham D, Bajwa AA, D’Agostino H, Huh SN, Li Z, Mendenhall NP, Nichols RC. Proton therapy with concurrent chemotherapy for non-small-cell lung cancer; technique and early results. Clin Lung Cancer. 2012 Sep; 13(5):352-8.

6. Colaco RJ, Huh S, Nichols RC, Morris CG, D’Agostino H, Flampouri S, Li Z, Pham DC, Bajwa AA, Hoppe BS. Dosimetric rationale and early experience at UFPTI of thoracic proton therapy and chemotherapy in limited-stage small cell lung cancer. Acta Oncologica. 2013 Feb; 52(3): 506-13.

7. Hoppe BS, Henderson RH, Pham D, Cury J, Bajwa AA, Morris CG, D’Agostino H, Flampouri S, Huh S, Li Z, McCook B, Nichols RC. A phase II trial of concurrent chemotherapy and proton therapy for stage 3 non-small cell lung cancer: Results and reflections following early closure of a single institution study. Int J Radiation Oncol Biol Phys. Article in press Nov. 8, 2015.

8. Sachsman S, Nichols RC, Morris CG, Zaiden R, Johnson EA, Awad Z, Bose D, Ho MW, Huh SN, Li Z, Kelly P, Hoppe BS. Proton therapy and concomitant capecitabine for non-metastatic unresectable pancreatic adenocarcinoma. International Journal of Particle Therapy. Winter 2014;1(3):692-701. http://www.theijpt.org/doi/abs/10.14338/IJPT.14-00006.1

Burnie Grill gave kids hope and happiness this Halloween

IMG_1058.JPG

By Frances Hanold

Last month, Burnie Grill and its founder and CEO Carl Spadaro participated in an afternoon of Halloween fun with us, celebrating his donation of five thousand dollars to the pediatric proton fund. Burnie Grill mascot "Burnie" joined children at the luncheon and handed out dolls of the company's Nordic Viking mascot to trick-or-treaters.

Children deserve the chance to enjoy life and experience holiday activities even though they have been diagnosed with cancer. The mission of the UF Health Proton Therapy Institute for the Children Fund is to remove fear from the treatment process. To achieve this mission, the fund provides support for a child life specialist, Family Fun Night and communal activities, a driver and van transport, and an artist-in-residence.

We thank Burnie Grill and Carl Spadaro for this generous contribution to the programs that will help us achieve our mission of making children as comfortable, free of fear and joyful as possible during their treatment.

Jacksonville Jaguar Zane Beadles hosts holiday gift drive

header image for Holiday Gift Drive1.jpg

Jacksonville Jaguars offensive lineman Zane Beadles is tackling more than opponents on the football field. Through his charitable foundation, The Zane Beadles Parade Foundation (ZBPF), he is also tackling a community project to bring fun, excitement and joy to our pediatric patients and their families.

Now through December 5, Zane is hosting a holiday gift drive at nine Jacksonville area drop-off locations.

"The UF Proton children are such an incredible, tenacious group," said Zane. "I'd love for the community to celebrate the Season of Giving by donating wish list items that these kids can enjoy year-round."

People in the community are encouraged to choose an item from the "UF Health Proton Therapy Institute Wish List" and bring it to one of the following locations:

  • Engine 15 Brewing Co.
    • 1500 Beach Blvd., Jacksonville, FL 32250
  • Mellow Mushroom (four locations)
    • 1018 3rd St. N., Jacksonville Beach, FL 32250
    • 3611 St. Johns Ave., Jacksonville, FL 32205
    • 9734 Deer Lake Ct., #1, Jacksonville, FL 32246
    • 1800 Town Center Blvd., Fleming Island, FL 32003
  • Reputation Ink
    • 1303 N. Main St., Suite 108, Jacksonville, FL 32206
  • Sports Mania
    • 1246 3rd St. S., Jacksonville Beach, FL 32250
  • Woody’s Bar-B-Q (two locations)
    • 1638 University Blvd S., Jacksonville, FL 32216
    • 8540 Argyle Forest Blvd, Jacksonville, FL 32244

Items on the "Wish List" include:

  • All ages
    • Zane Beadles Snuggle Pad: The Zane's Parade Snuggle Pad is a plush toy elephant that doubles as a functional fold-out tray. Every donation of a Snuggle Pad is matched one-for-one by Zane's Parade, so your purchase means two children will benefit. To order, visit the ZBPF Shop at zanesparade.org
    • Bubbles, I Spy books, light-up spin toys, iPad Minis
  • Infant
    • Musical toys and light-up toys
  • Toddler
    • LEGO Duplo blocks, musical toys, light-up toys, See 'n Say, Playskool Busy Poppin' Pals toys
  • School age
    • Sticky Mosaics toys, coloring books, LEGO friends sets, Hot Wheels, Fuzzy Velvet posters, playing cards and puzzles (50-100 pieces)
  • Teen
    • Individual arts and crafts kits, Fuzzy Velvet posters, picture frames, LEGO BIONICLE kits, playing cards, UNO, Phase 10, electronics, DVDs (Rated G, PG, or PG-13), games for Xbox, Kinect (games must be rated E, E10+ or Teen and non-violent)

About the Zane Beadles Parade Foundation

The Zane Beadles Parade Foundation (ZBPF) supports the journey of young people going through life-changing medical experiences. Founded in 2013, ZBPF is a 501(c)(3) nonprofit organization that gives the gift of fun, excitement, and joy to young patients and their families. Scientific studies and personal experiences prove that having positive, meaningful experiences significantly improves patients' quality of life, lowers their stress levels, and improves their overall recovery during treatments for serious medical conditions.

To learn more about the Zane Beadles Parade Foundation, please visit zanesparade.org.

Message from Stuart Klein, Executive Director

Stuart Klein, Executive Director

Aud’s Chime, prominently displayed in our main lobby since January 2013, is a powerful symbol of healing and hope. It is rung by patients the day they complete their six- to eight-week proton therapy treatment. This celebration, and the treatment that makes it possible, is something unique that we want to share with others who are facing a cancer diagnosis. So we have created a new TV commercial that is on air in select Florida cities. Click here to view the commercial.

We shot the commercial entirely on location at our facility, and many of our staff volunteered during the weekend production as extras or helped behind the scenes. All of the people shown in the commercial are proton therapy alumni patients who volunteered to participate. The woman who is featured ringing the chime is Kelly Jones, a breast cancer survivor, who is an assistant principal at a middle school in Gainesville. You can read more about her story in this issue of Precision. She was treated here in 2012, prior to the chime installation. We were able to capture the true, emotional moment of her ringing the chime for the first time surrounded by her actual family and friends. It was inspiring, as all the chime ringing celebrations are, and we think it will be a powerful and persuasive message of hope to all who see the commercial.

Feel free to share the link with your friends and family, and encourage them to help spread the word about the life-saving treatment we deliver every day.

Sincerely,

Stuart Klein

Proton therapy preserves quality of life for breast cancer survivor

Kelly Jones

By Theresa Edwards Makrush

On March 27, 2012, nine months after her wedding day, Kelly Jones got an unexpected and unwelcome phone call from her doctor. She was diagnosed with an aggressive form of breast cancer.

“We should have been planning our first anniversary celebration. Instead we were figuring out how I was going to beat this cancer,” said Kelly during a speech she made at the Oct. 11 dinner and silent auction that was part of the 11th Annual Play Golf. Fight Cancer.® Classic.

She and her husband Darin and her physician decided that she would have a mastectomy followed by six rounds of chemotherapy and six weeks of radiation.

At the very beginning of her treatment, she decided that she wanted to keep her life as normal as possible, which included working as a middle school assistant principal in Alachua County Public Schools, visiting with friends and staying active with her family.

One evening in July, she was invited by her parents Gail and Eric Brill to go with friends to Steinhatchee, Fla., a Gulf coast community famous for its abundance of scallops and only an hour-and-a-half drive from her home in Gainesville. Among the group was Dr. Nancy Mendenhall, UF Health Proton Therapy Institute medical director. Kelly’s breast cancer treatment came up in conversation, and when Dr. Mendenhall learned that Kelly’s cancer was in the left breast, she took Kelly aside.

At the time, the Institute had started a clinical trial using proton therapy to treat cancer in the left breast, and Dr. Mendenhall encouraged Kelly to consider it. Based on previous research comparing treatment plans of protons, IMRT and conventional X-rays, there was evidence that proton therapy could target the treatment area in the chest and minimize damage to the heart and lungs. This advantage appealed to Kelly, who was already at risk of damage to her heart due to chemotherapy.

Incidentally, much of the research done at the Institute is possible through philanthropic donations and funds raised during the annual Play Golf. Fight Cancer.® Classic. For years, Kelly’s mother Gail Brill had volunteered at the tournament, never knowing that one day her own daughter would benefit from the program.

Shortly after the Steinhatchee scalloping trip, Kelly had a consultation with Dr. Roi Dagan at the UF Health Proton Therapy Institute in Jacksonville. He evaluated her as a good candidate for proton therapy and eligible for the clinical trial. As they discussed the daily treatment that would take place over six weeks, Kelly insisted that Dr. Dagan make sure that she would be completed in time to go on her annual “girls’ weekend” cruise in the Caribbean. He assured her this would happen.

Three years later, Kelly has no sign of cancer. She and her family and friends are grateful that Kelly had access to proton therapy, and they do what they can to support the Institute and spread the word to others who may benefit from the treatment. They recently volunteered to be in the Institute’s just-released TV commercial featuring Kelly ringing Aud’s Chime in the main lobby. Kelly was interviewed by The Gainesville Sun for an article in the newspaper’s breast cancer awareness special section. And she shared her story with the audience at the Play Golf. Fight Cancer.® dinner. There Kelly thanked her husband Darin for his tremendous support. She thanked Dr. Mendenhall for taking time out of her vacation three years ago to tell Kelly about proton therapy. She thanked the tournament’s past and current donors for making clinical research possible at the Institute. And she thanked Dr. Dagan for his expert care, and of course, for making sure she boarded the ship on time.

 

>> Click here to learn more about Proton therapy for Breast Cancer.

 

 

A Tribute to Aud

Last month, at one of the weekly patient luncheons, Sharon Kadelsik, wife of “graduate” Darrell Kadelsik, shared a poem she wrote. It beautifully conveys the significance of Aud’s Chime. It is published here with her permission.

By Sharon Kadelsik

You claim the place of honor in the House of Proton and proudly declare a message of hope and healing to all who come here.

You reign in your glass chamber and observe the daily activities of those who dispense and those who receive the precious gift of life.

Each of us anxiously awaits the day when it’s our time to have a personal encounter with you. When your beautiful voice will declare to the world that we have conquered the enemy within.

You knew from the first day that we would not stay for long. We are part of an ever changing face of those who have sought a place of refuge and found the healing touch of Proton.

Today is the day you will sing for Darrell and let the world know that he has faced the foe, has fought the battle, and has won. You will herald his victory and send him out into the world with your message of hope for others.

Each time we hear your clear and beautiful chime, we pause and say thank you for all the people who labor in your house and the gift of Proton Therapy.

11th Annual Play Golf. Fight Cancer.® Classic wrap up

Jacksonville Jaguars' mascot Jaxson

Jacksonville Jaguars' mascot Jaxson de Ville helped kickoff the tournament with Stuart Klein, executive director of UF Health Proton Therapy Institute (l), and Michael McPhillips, voluntary tournament chair (r).

By Theresa Edwards Makrush

The 11th Annual Play Golf. Fight Cancer.® Classic presented by IBA and .decimal was held on the First Coast for the first time. It was previously held in the Orlando area, and in its first 10 years raised more than one million dollars to support cancer research at UF Health Proton Therapy Institute in Jacksonville. The event took place Oct. 11 and 12 at the World Golf Village in St. Augustine, Fla., with a dinner and auction in the World Golf Hall of Fame & Museum and a tournament on the location’s two championship courses – the King & Bear and the Slammer & Squire. To see photos of the event, click here.

Dinner & Auction – Sunday, Oct. 11
This year the event included a dinner and auction the evening before the tournament, making it possible for supporters who do not play golf to participate. Approximately 200 guests gathered in the World Golf Hall of Fame & Museum to enjoy an evening of golf history and chances to bid on and win auction items. Dr. Tony Parker, the museum’s official historian, related stories of his time working at the famed St. Andrews course in Scotland and the celebrities he met including actors Michael Douglas and Jack Nicholson and professional golfers like Jack Nicklaus. Proton therapy patient and breast cancer survivor Kelly Jones shared her story. And celebrity Chef Robert Tulko led a live auction of five premium items including a week stay in a beautiful North Carolina cabin and a dinner for six prepared by Chef Robert.

Golf Tournament – Monday, Oct. 12
More than 200 golfers teed off at the two courses at the World Golf Village. Honorary Chair Shannon Miller greeted players during the tournament and at the awards reception shared her experience winning 1996 Olympic gold in gymnastics and later fighting and surviving cancer. World Golf Hall of Fame member Hubert Green, a cancer survivor, played in the tournament as did Josh Scobee, NFL kicker and former Jacksonville Jaguars player. Other special guests included Jaguars’ mascot Jaxson de Ville, Nease High School’s Navy JROTC Color Guard and vocalist Virginia Beverly who participated in the opening ceremonies at both courses and Naval Air Station Jacksonville sailors who tended the U.S. flag at the 18th hole on both courses. On-course activities included chances to win a car by making a hole-in-one, a contest for closest to the pin and a contest for longest drive. Trophies were awarded for the best-scoring teams in each of three skill levels at each course.

Workshop for lung cancer patients and caregivers

Patients and caregivers are invited to learn about the latest treatments for lung cancer at a free workshop taking place at UF Health Proton Therapy Institute.

It will be held on November 5 at 12 p.m. in the Research Room. The featured speaker is Dr. Bradford S. Hoppe who is associate professor of radiation oncology at UF and is the James E. Lockwood, Jr., Endowed Chair of Proton Therapy. He will discuss side effects, side-effect management, and tools to overcome the social and emotional challenges of the diagnosis. We hope to answer many of your questions about lung cancer to help you or your loved one manage the disease more successfully.

The workshop is made possible in collaboration with the American Lung Association and a charitable contribution from Lilly. For more details and to RSVP, call Lauren Clark at (904) 520-7120 or visit cancersupportcommunity.org.

Pages

About This Newsletter

The Precision Newsletter is an electronic-only publication that is distributed by email. Each issue is sent monthly to patients, alumni patients and friends of the University of Florida Health Proton Therapy Institute. As the official newsletter of the Institute, the content is compiled and prepared by our communications representative and approved by the editor Stuart Klein, executive director of UF Health Proton Therapy Institute. Special bulletin newsletters may occasionally be prepared when timely topics and new developments in proton therapy occur. If you would like to send a Letter to the Editor, please click here.

 

Keep In Touch

It is easy to stay in touch with us online at floridaproton.org . Look at the top right corner of the homepage for Facebook , Twitter and YouTube icons, click and join us in the social media conversation. Also on the right side of the homepage there is a button for VTOC Patient Portal . Click here to open your secure account, view your records, complete clinical trial questionnaires and communicate with your nurse case manager.

 

Knowing how you are feeling during and after treatment is essential to providing you the best care possible and contributes to the care of future patients.